Dark Day #3

 Dark Day 3 is today June 3rd

I didn't get much sleep that night so about 6am I headed to the hospital for an update. On my way there I got a phone call from the doctor to tell me that his brain function was basically gone. He was pretty much brain dead and it was time to make a decision whether to put him on machines or to just let him go. I turned around to go back to the kids so I could let them know what we were now faced with. After talking with them I called the hospital and they graciously agreed to let my kids go and say goodbye. The only thing is it had to be one at a time because of covid restrictions. So I walked my children into the hospital one at a time to say goodbye to their father. It's something all too familiar to me as I had done that same thing 23 years ago with my siblings. After they had all said their goodbyes I went back up to sit and hold his hand until he officially passed. My family who I am ever grateful for and a dear friend stayed in the parking lot to console my children in what was the most difficult time in their young lives. It wasn't long after the medical aids were taken away that he was gone. Being the 3rd time of having to make that life ending decision wasn't any easier than the other two. Can I just say that ALS sucks!! It doesn't just take away the one diagnosed. It also takes the family with it. The people who nutured that person and tried their best to make sure everything was exactly how they wanted it. They were there for his every need knowing that the outcome would be the same in the end. For all the people living with ALS and their caregivers, I feel for you and I pray for you.